I just found out that one of my favorite musicians, Andrew McMahon of Something Corporate and Jack's Mannequin, was diagnosed with ALL when he was 22. He has been cancer free for 8 years -- yay! I'm not usually one to follow celebrities' personal lives but the fact that he had a bone marrow transplant and is now doing well is definitely one of those pieces of information that I need to store up and pull out for some of my teenage patients.
I've been really stressed the last few days as it hits me that not only will I be stressed in rearranging how I manage my own life as I adjust to being a working mom, I will also be emotionally stressed by these kids I'm about to work with. When I was a student it was easy to not be fully invested, but I think it's going to be different now that I'm really working and am going to be so immersed in this life. Not to mention the fact that now I'm a mother and can fully comprehend the agony of seeing your child suffer. So positive stories like this can, I think, help both me and my patients. Hopefully I find a few teenagers who are interested in some retro pop punk and the inspiring story of a survivor.
This interview with McMahon was great and discusses briefly some of the aftermath of dealing with a disease like cancer. He also has a foundation, the Dear Jack Foundation, for young adults who want to go to college but whose parents funds are depleted from paying for cancer treatments. It's really nice to know that despite the presence in the world of a sucky thing like cancer, there are also oases of awesome.
Also, go listen to Andrew McMahon's solo EP, Jack's Mannequin and Something Corporate because they rock. Seriously, SoCo was my favorite band in high school. Go.
Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts
Thursday, August 29, 2013
Wednesday, May 22, 2013
Courage.
Many people have asked me why my goal is to work with children who have cancer. They ask how I can handle it, especially having a son of my own now. I've never been able to put it into words. I have a few answers of course -- I've lost loved ones to cancer and it has inspired me to help others, I like working with patients long-term, I find working with cancer patients to be more challenging and rewarding than other forms of nursing -- but the real reason is this ineffable quality I've never been able to define.
Watch this video, and I think you'll understand. (It is long, but it is well worth twenty minutes of your day -- much more worth it than time spent on Facebook or watching a show. Trust me on this one).
I want to work with children who have cancer because I want to help people who are struggling with this vicious disease. But the truth is that they help me far more than I can ever help them. So far I have only worked with cancer patients and their families in school and volunteer capacities, and already so many of them have changed my life. I have seen teenage boys like the one in the video who are so willing to seize life despite the discomfort and fear their cancer brings them. I have seen a six-year-old girl confined in a hospital room for months at a time who still manages to smile every single day and live her life with a zest and passion I've rarely seen elsewhere. I have spent time with children bearing the burden of loss and disease as their parents suffer with cancer, and the way they still have so much joy and love in their souls.
People have asked me how I can leave my beautiful son and go to work. Part of me still wonders how I will do it. I would love to stay home with him always, and I am grateful that nursing doesn't take me from him every day. Part of the reason I am going to work is financial of course -- we need insurance and money to live in this expensive place. But another part of that reason is that multiple times I have felt the Spirit prompt me to do this work. I didn't want to be a nurse at first -- I had lofty career goals and prestigious degrees in mind. I resisted the prompting I felt to change my life, but it was one of the best decisions I have ever made. Changing my carefully constructed plans made me available to marry my wonderful husband, gave me the freedom to have a child sooner than I had originally thought I would, allowed me to move to this city where I have already met so many wonderful people. At first I thought changing those plans was only to facilitate those results, but about a year ago, 7 months pregnant and wondering if I should continue in my plans to work, I felt it again -- the Spirit calling me to care for these children, better their lives in any way I can, and allow them to better me.
The courage of the young man in this video and his wonderful, supportive loved ones has moved me so much today. Death is a strange thing -- it is the thing people fear most, it is one of the only universal experiences, and yet it can also inspire us in such a beautiful way. I know that I will be less likely to complain when one of the many tiny things that inevitably go wrong falls upon me today. I will remember Zach and the other children who have touched my life and inspired me to live better.